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Title:Mother Shares Births of 2 Babies with Rare Disabilities in Dr. Lynn Jorde's Genetics. Debbie Jorde
Duration:44:12
Viewed:723,339
Published:08-10-2018
Source:Youtube

Video chapter links below description. Every year, Debbie Jorde and her son and daughter, Logan and Heather Madsen, speak to first-year medical students at the University of Utah in Dr. Lynn Jorde's Human Genetics Course. Heather and Logan were both born with the rare disease, Miller syndrome, and a rare lung disease called Primary Ciliary Dyskinesia, PCD. They also have autism. Their talks are enlightening and informative for not only medical students, and medical professionals, but also the general public. Video Chapters 00:00 Intro 01:14 Debbie Married 01:56 Debbie Pregnant 03:26 Debbie In Labor 04:16 Baby's Born with Visible Problems 06:13 Debbie's Reaction to Baby with Bent Arms 08:38 Debbie Wants to See Baby 16:01 Baby Heather's In Trouble 20:00 Debbie Leaves the Hospital Alone 21:54 Debbie Visits Baby Heather In ICU 24:06 Taking Baby Heather Home 25:12 First Doctor Appointment: Plastic Surgeon 26:05 Debbie Cries Because Surgeon Cold & Clinical 26:30 Debbie Asks For Different Plastic Surgeon 26:57 Cold Surgeon Checks Baby Heather After Surgery 27:21 Debbie Warms Up to Plastic Surgeon 27:48 Debbie Compares Surgeon's Personality to Doc Martin 28:20 Funny Story About Surgeon's Reaction to 2nd Baby's Birth 29:26 Geneticist Calls With Rare Syndrome Diagnosis 30:23 Geneticist Says Reoccurance Risks Zero 31:03 Debbie Decides to Have a 2nd Child 32:16 Debbie Has UltraSound at 7 Months Pregnant 32:37 UltraSound Tech Predicts Healthy Girl 32:45 UltraSounds Not As Good in 1980 33:20 Debbie In Labor With 2nd Child, Baby Logan 33:54 Birth on April Fool's Day 34:21 In The Delivery Room For Birth 35:40 Baby Logan In Intensive Care 36:00 Debbie Calls Family and Friends 37:17 Baby Logan Goes Home 37:44 Emergency With Baby Logan 38:50 Logan Goes Home, Debbie Tube Feeds Logan 6 months 39:39 Heather Tube Feeds Her Doll 40:02 Father Loved Family 40:42 Financial Collapse 41:35 Father Depressed 41:59 Father Has Affair 42:20 Father Abandon's Family 43:00 Debbie Looks For Help 43:33 Read More of Family's Story in EIGHT FINGERS EIGHT TOES: ACCEPTING LIFE'S CHALLENGES More of their story is in Debbie's book, "Eight Fingers and Eight Toes: Accepting Life's Challenges" https://www.amazon.com/Eight-Fingers-... The theme of Debbie's book is: challenges are made easier when one focuses on solutions to problems that can be changed or improved, and accept the problems that one can do nothing about. Learn from real-life examples! Read more about their inspiring story, overcoming challenges, and read Heather Maden's prose and poetry on Debbie's website: https://www.debbiejorde.com/ Watch the Documentary, LOGAN'S SYNDROME, available to STREAM online NOW and on DVD! Learn more: http://www.logansyndrome.com/ Stream LOGAN'S SYNDROME documentary: AMAZON http://a.co/d/7HTEI6r YOUTUBE https://bit.ly/2F7EROU GOOGLE PLAY https://bit.ly/2Cm3uXE ITUNES https://apple.co/2zPelbv VUDU https://bit.ly/2Cm3uXE Also, visit Logan Madsen's website to see his stunning art: https://www.loganmadsenfineart.com/

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